Major Pleasures (1 Viewer)

[magicbastarder]

A year after diagnosis I was told today that my MS hasn't progressed and is stable.

what sort of issues do you have to deal with?

 

[Anthony]

Can I ask you, do the specialists say that pills or avoiding stress or doing exercise or diet or some combo of both can help this?
Or does MS have a mind of its own so to speak?

Yea, stress can be a trigger. I found that out the hard way. My understanding is that the meds (in my case it's an infusion) keep the MS under control while good diet, avoiding stress and physio are all recommended to help deal with daily symptoms, well, not quite symptoms, but effects.
MS is wild and unpredictable. So yea it does have a life of it's own in a way. It hits the nervous system which is a wide target.

 

[Anthony]

what sort of issues do you have to deal with?

Vision issues mainly, a tough of drop leg, some coordination/balance, energy. Shit like that.

 

[dudley]

A year after diagnosis I was told today that my MS hasn't progressed and is stable.

Bleedin' deadly news

 

[Anthony]

A year after diagnosis I was told today that my MS hasn't progressed and is stable.

Interestingly it was only yesterday that my consultant let me in on how bad my initial scans were. He said they were fairly bad alright. Glad I didn't know that then. Getting the diagnosis was bad enough news.

 

[Denny Oubidoux]

Apparently my cholesterol levels are great! I'm going out for chips and crisps and pastries*

*not really, salad and salmon for tea this evening

This is no longer true. Bye pastries :-(

 

[Deadmanposting]

This is no longer true. Bye pastries :-(

I'm afraid to even check

 

[therealjohnny]

This is no longer true. Bye pastries :-(

Mine is too high but didn't warrant going on statins "yet", the last time I had it checked

I've started taking plant sterols. I'll find out if I'm pissing against the wind the next time I get it checked.

Looking again at the instructions I need to up my dose

 

[Denny Oubidoux]

The doctor just told me to manage it by changing my diet, so I'll at least try that. I was planning to do it anyway, some day soon.

I'm afraid to even check

I'd say you probably have minus levels of cholesterol with your push-ups and 5am sea swimming

 

[rettucs]

The doctor just told me to manage it by changing my diet, so I'll at least try that. I was planning to do it anyway, some day soon.

same, just not today

 

[Deadmanposting]

The doctor just told me to manage it by changing my diet, so I'll at least try that. I was planning to do it anyway, some day soon.

I'd say you probably have minus levels of cholesterol with your push-ups and 5am sea swimming

Post swim treats

 

[Denny Oubidoux]

I love icing

 

[nuke terrorist]

At the moment I am able to get up at 6:30-7 am and start kicking arse cooking and cleaning without worrying about waking anyone else up.

 

[Deadmanposting]

At the moment I am able to get up at 6:30-7 am and start kicking arse cooking and cleaning without worrying about waking anyone else up.

Nice
How do you work that with your bedtime?

 

[nuke terrorist]

Nice
How do you work that with your bedtime?

I don't go to sleep at a regular time but usually I only sleep 6 or 6 1/2 hours. that is not planned that's just how long I sleep for.
in recent days I have gone to sleep at times ranging from 10 pm to 2 am and after 5:30 am once, which is highly unusual.
have gotten up between 6:15 and 8:15 this week.

EDIT:
I often go to bed from before it gets dark and listen to records and look at internet and sometimes even read(!) until I conk out - whatever time that is.

 

[Deadmanposting]

I don't go to sleep at a regular time but usually I only sleep 6 or 6 1/2 hours. that is not planned that's just how long I sleep for.
in recent days I have gone to sleep at times ranging from 10 pm to 2 am and after 5:30 am once, which is highly unusual.
have gotten up between 6:15 and 8:15 this week.

EDIT:
I often go to bed from before it gets dark and listen to records and look at internet and sometimes even read(!) until I conk out - whatever time that is.

Great that you are getting up early and being productive
I have found, for me, that a regular sleep schedule is life-changing

I try not to internet once I'm in bed. I try. Leaving the phone charging in the living room is an ongoing battle.

 

[egg_]

Mine is too high but didn't warrant going on statins "yet", the last time I had it checked

I've started taking plant sterols. I'll find out if I'm pissing against the wind the next time I get it checked.

First time I got mine measured (about 10 years ago) I had total cholesterol of 7.5 mmol/L, which is high as fuck. Cut down a lot on animal fats and started on plant sterols and it went down to 5.7. Has crept back up since though - was 7.2 last summer, but I was tested just after arriving home from a month away (so 4 weeks of eating almost entirely in restaurants). Was due to get tested again yesterday, but postponed it cos again I was just back from hols (only a few days this time, but still)

Anyway they haven't put me on statins yet, cos I'm fairly skinny and my blood pressure is low. I suppose I'll have to go on them eventually though - can't really see how I could make my diet much healthier and still enjoy eating

 

[egg_]

Oh and I came here to say - I went canoeing on the Barrow for a few days last week, and despite the weather it was absolutely lovely. Just buzzing about in canoes surrounded by nature, with the 14 year old teaching us songs from some TV show and us all singing

 

[Kermit McDermott]

...

 

[Scientician 0.8]

Bank Holidays are class.