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    Don't know where else to put this

    Eoin has a carer 3 nights a week (overnight,to turn him and keep a general eye on him,then help get him ready for school) but during the day and other nights it's all us. We dont mind as such as we mess with him and talk with him etc. But I won't lie,it's exhausting. But like,don't all parents...
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    Don't know where else to put this

    Thanks for asking. He is doing fine,still very happy and loving school. I only posted it because it was there,and to help raise awareness for Laura Lynn and how great they have been. No request to donate or anything.
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    Don't know where else to put this

    https://www.lauralynn.ie/news/meet-eoin
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    Don't know where else to put this

    @pete I dont think this thread needs to still be a sticky. Thanks for having it there for so long. To everyone else.,if you even thought about him for a moment,thanks. He's doing ok. Enjoying school ( 3 days a week in a more sensory based class) and loves hearing stories,having books read...
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    They were great,super nice, "Got it" and we had a bunch of other kids come and mess. So chuffed to have gotten it to happen. He loved the attention and seemed to really enjoy it. https://www.facebook.com/EmeraldGarrison/
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    Don't know where else to put this

    Eoin had some visitors today
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    Don't know where else to put this

    Got your message,and replied. Thanks for thinking of Eoin.
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    haha!!! I don't have a password for that page, I have band practice on thursday,maybe I can see it then. Haha!!!!! when I say fuck facebook,I mean it.
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    still not working
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    Link is broke,says page isn't available.
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    Don't know where else to put this

    Thanks everyone. Just to be clear,I'm not at all involved in it. But it's definitely worthy. The kid has the same condition as Eoin,so it does mean a lot to me.
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    Don't know where else to put this

    Absolutely. I really can't imagine how much more lost we would have been without Avrils paediatric nursing background. And thanks everyone.
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    Don't know where else to put this

    If anyone has a few minutes https://my.uplift.ie/petitions/newborn-screening-expansion
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    Don't know where else to put this

    Quite the day for it.
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    Don't know where else to put this

    Not much to update really.Still happy, and loves nothing more than a story read to him,or talking about Dr Who. If anyone cares to take the time to read and maybe share this it would be great. Eoin currently goes to two different schools. Two days a week to his mainstream school,just because...
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    Don't know where else to put this

    I keep thinking I should update people but never know what to say. Anyway,he is still a super happy kid,we try our best. Have started making use of the Laura lynn charity. They've come out to do music therapy with him etc. He saw a new doctor today who was super nice and helpful. And we...
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    Don't know where else to put this

    Fair play lads.
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    Don't know where else to put this

    Finally we got the car sorted. Huge help from Nissan Ireland,although the car is a Peugeot. No more lifting Eoin in and out of a car seat,we can wheel his chair in. He's hopefully going to be a lot more comfortable now.
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    Don't know where else to put this

    just from putting them on the shelves,I already see sorting,and especially listing loads for sale,as being quite therapeutic.
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    Don't know where else to put this

    My back is broke,but its good to be home. First time my records have been upstairs in about 15 years. Purge coming.
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